Parents’ perspectives on integrating AAC into life (O’Neill & Wilkinson, 2020)
journal contributionposted on 21.01.2020, 20:35 authored by Tara O’Neill, Krista M. Wilkinson
Purpose: To ensure long-term adoption and use of augmentative and alternative communication (AAC) technologies, they must be designed to support children to participate within everyday activities and routines that are prioritized by families. The aim of this study was to gain parent perspectives on how AAC technologies were integrated into everyday life.
Method: Nine parents of children with cerebral palsy who used AAC technologies participated in semistructured interviews to provide their perspectives on how AAC technologies were integrated into the functional contexts of everyday life.
Results: Five major themes emerged from the discussions: (a) integrating AAC into life, (b) AAC technologies, (c) child needs and skills, (d) parent responsibilities and priorities, and (e) AAC process and decision making. Children were able to use AAC technologies within a variety of everyday contexts with various partners; however, challenges included access to technologies within care routines and outdoor activities as well as partners who lacked knowledge regarding operational competencies and effective interaction strategies. To integrate AAC technologies into life, parents prioritized technology features including ease of programming, improved physical design, features to enhance efficiency and ease of access, and availability of multiple functions and features (e.g., games and leisure activities, environmental controls).
Conclusion: AAC manufacturers and mainstream technology developers should work to ensure that technologies are responsive to the supports, limitations, and ideal features identified by parents. Future research should seek input from a larger group of stakeholders and use longitudinal methods to examine perceptions of AAC technologies over time.
Supplemental Material S1. Semi-structured interview guide.
Supplemental Material S2. Codebook.
Supplemental Material S3. Bracketing statement.
O'Neill, T., & Wilkinson, K. M. (2020). Preliminary investigation of the perspectives of parents of children with cerebral palsy on the supports, challenges, and realities of integrating augmentative and alternative communication into everyday life. American Journal of Speech-Language Pathology. Advance online publication. https://doi.org/10.1044/2019_AJSLP-19-00103
This project was supported, in part, by funding from the Penn State AAC Leadership Project, a doctoral training grant funded by the U.S. Department of Education (Grant H325D110008).
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augmentative and alternative communicationcerebral palsychildrenparentssupportchallengerealityintegrationcommunicationperspectiveslong-termuseeverydayactivitiesdailyroutinefamilyAACinterviewfunctionalintegratingtechnologyneedsskillresponsibilitypriorityprocessdecision makingpartnercareoutdooroperationalcompetencygamesleisureefficiencyaccesseaseenvironmentresponsivefeaturesspeech-generating deviceappsCommunication Technology and Digital Media StudiesMedical DevicesLanguage, Communication and Culture not elsewhere classifiedCommunications Technologies not elsewhere classified