Cross-country parental perspectives of LDs (Jensen de López et al., 2021)
journal contributionposted on 2021-04-06, 21:14 authored by Kristine Marie Jensen de López, Rena Lyons, Rama Novogrodsky, Sofia Baena, Julie Feilberg, Sam Harding, Maja Kelić, Inge Sophie Klatte, Jantina Clasina Mantel, Marina Olujić Tomazin, Thora S. Ulfsdottir, Krisztina Zajdó, Isabel R. Rodríguez-Ortiz
Purpose: Although researchers have explored parental perspectives of childhood speech and language disorders, most studies have been conducted in English-speaking countries. Little is known about parental experiences across countries, where procedures of language screening and services for language disorders differ. The authors participated in the COST Action IS1406 “Enhancing Children’s Oral Language Skills Across Europe and Beyond,” which provided an opportunity to conduct cross-country qualitative interviews with parents. The aim of this pilot study was to explore ways in which parents construed and described speech and language disorders across countries.
Method: Semistructured qualitative interviews were conducted with parents from 10 families in 10 different countries. The data were analyzed using thematic analysis.
Findings: The overall theme was “acknowledging parental expertise.” The parents described in detail ways how their children’s speech and language (dis)abilities had an impact on the children’s everyday life. Three subthemes were identified: impairment, disability, and changes over time.
Conclusions: The findings suggest that, across a range of countries, parents construe contextualized understandings of their children’s speech and language (dis)abilities, along with the everyday functional implications of the disorders. Hence, despite not holding professional knowledge about language disorders, the voices, views, understandings, and personal experiences of parents in relation to their child’s disorder should be listened to when planning therapy services.
Supplemental Material S1. Ethical approval.
Supplemental Material S2. Interview details.
Supplemental Material S3. Examples of visual materials developed in identifying patterns of meanings, themes and sub-themes across the data sets.
Jensen de López, K. M., Lyons, R., Novogrodsky, R., Baena, S., Feilberg, J., Harding, S., Kelić, M., Klatte, I. S., Mantel, J. C., Tomazin, M. O., Ulfsdottir, T. S., Zajdó, K., & Rodriguez-Ortiz, I. R. (2021). Exploring parental perspectives of childhood speech and language disorders across 10 countries: A pilot qualitative study. Journal of Speech, Language, and Hearing Research. Advance online publication. https://doi.org/10.1044/2020_JSLHR-20-00415
The project was part of the work of COST Action IS1406 entitled “Enhancing children’s oral language skills across Europe and beyond: A collaboration focusing on interventions for children with difficulties learning their first language,” funded by the European Union.
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speechlanguagedisorderschildrenchildhoodparentperspectiveculturalcross-culturalinternationalcross-countryinterviewexperiencescreeningserviceacknowledgeimpactquality of lifeimpairmentdisabilitytimechange over timeunderstandingtherapyLinguistic Processes (incl. Speech Production and Comprehension)LanguageMulticultural, Intercultural and Cross-cultural Studies